Disability Resources

General Interest Sites

Beach Center on Disability
http://www.beachcenter.org/

The Beach Center is a university-affiliated program that focuses on issues facing individuals with disabilities and their familes. Their website offers information about research, publications, resources and links.

Center for Parent Information and Resources
http://www.parentcenterhub.org

CPIR serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.  The website includes a resource section in English and Spanish.

Cornucopia of Disability Information
http://codi.buffalo.edu/Welcome.html

CODI provides a long list of links to various disability-related websites, and includes a depository of electornic disability documents dating back to the 1990s.

Council for Exceptional Children
http://www.cec.sped.org

The Council for Exceptional Children (CEC) is a professional organization dedicated to improving educational outcomes for students with exceptionalities. Its website focuses on special education issues.

Date Resource for Child and Adolescent Health
http://www.childhealthdata.org/

The Children and Youth with Special Health Care Needs (CYSHCN) homepage of the Data Resource Center for Child and Adolescent Health provides access to data gathered through the National Survey of Children with Special Health Care Needs (CSHCN). The survey provides information about CYSHCN in all 50 states and the District of Columbia.

disABILITY Information and Resources
http://www.makoa.org/

This site contains a long, long list of links, covering practically every disability-related subject imaginable. Quite comprehensive and well worth a visit, it does require some patience to sift through its vast holdings.

Disability Resources on the Internet
http://www.disabilityresources.org/

Disability Resources, Inc. is a non-profit organization that organizes and publishes this website and a monthly newsletter, as well. The site is comprehensive and easy to navigate.

Exceptional Parent Magazine 
http://www.eparent.com/

This is the web version of Exceptional Parent Magazine, which has been an ongoing resource for families with children with any disability for many years.

Guidelines for Reporting and Writing about People with Disabilities
http://rtcil.org/products/media/guidelines/portayalissues

The Life Span Institute hosts this page, which provides information about appropriate terminology when writing or reporting on individuals with disabilities. The guidelines were developed by the Research Training Center on Independent Living.

Internet Resources for Special Children
http://www.irsc.org/

This website has organized the disability-information world into categories, ranging from Adaptive Equipment to Support and Assistance. It is clean, clear, informative and easy to use.

Maternal and Child Health Bureau (MCHB)
http://mchb.hrsa.gov/

MCHB is a bureau of the U.S. Department of Health and Human Services Health Resources and Services Administration. The Maternal and Child Health section contains many valuable publications to families of children with disabilities. The National Survey of Children with Special Health Care Needs Chartbook contains comparative surveys regarding children with disabilities.

 

Early Intervention

Early Childhood Technical Assistance Center
http://www.nectac.org/

The Early Childhood Technical Assistance Center supports the implementation of early childhood provisions of IDEA. The site provides connections to a early childhood contacts, programs, publications and information.

ERIC — Links for Early Childhood
http://ericec.org/faq/earlyc-x.html

Early childhood links from ERIC’s Clearinghouse on Disabilities and Gifted Education.

Parent Links
http://www.myparentlinks.com/

A website that provides information and links to services and supports for families of children 0-3 with a hearing loss.

Zero to Three
http://www.zerotothree.org/

The Zero to Three website provides information about early childhood development for families and professionals.

 

Information about Specific Disabilities

Genetic Alliance
http://www.geneticalliance.org/

The Genetic Alliance maintains a database to assist families in connecting with support and information about a very wide range of disabilities, organized by condition, organization and service provided.

National Institute of Health — Genetic and Rare Disorders Information Center
http://rarediseases.info.nih.gov/

A wealth of information about rare diseases, including links to other sites, NIH’s Office of Rare Disease’s website also contains information about clinical trials and links to patient support groups.

National Institute Neuro Disorders/List of Disorders
http://www.ninds.nih.gov/health_and_medical/disorder_index.htm

NINDS Disorders page is arranged alphabetically. Each page provides well-written and concise information about specific neurological disorders, and includes listings of support organizations and further web resources.

National Organization for Rare Diseases (NORD)
http://www.rarediseases.org/

NORD is a long-time resource for information about rare disorders. It maintains a database with a information about over 1100 disorders; descriptive pages include include links to organizations that provide information, referral and support. NORD also maintains a database of organizations and one for orphan drugs.

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